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Today his face after getting gluten |
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His poor face before we knew he couldn't have gluten |
I struggle everyday with making sure that my boy does not get any gluten. He has Celiac Disease and he was diagnosed when he was 5. Along with having Celiac he also has some food allergies that he should outgrow but I haven't tested this theory in a while. Some of his food allergies include, rice, bananas, strawberries, carrots, apples...all the good stuff that I was putting in his smoothies and the rice well it is a basic in gluten free food. So what do I feed this boy? I feed him exactly what he likes with a few modifications. I know he has it rough living off pizza, pancakes, smoothies, corn and cheese roll ups. He really only has a handful of items he will eat and recently we have been able to add grilled cheese back into his diet. He hasn't eaten this since his grandma would make it for him when he was 2. But cooking in a kitchen that is used for cooking items that have gluten in it is proving to be a little tough on this momma. I have an entire cabinet just for his stuff and then there is the pantry for food that has gluten. The problem I have is with the peanut butter. I have two active jars of peanut butter. One is for my boys food and then the other is for everyone else. The reason for this is he can get gluten from the peanut butter that has had a knife dipped in the jar that was used on bread with gluten. I mark each jar, one that says GF and one that is not GF and I even tear the paper off one of them to bring it to my attention that hey don't use this on E's bread and I still manage to contaminate his food with gluten. Yesterday I made him pancakes and put peanut butter on it and then I used the other peanut butter for my girls food and when my boy wanted seconds I used the wrong peanut butter. This truly is a frustrating thing for me because my pantry has had four jars of peanut butter in it at one time that I have contaminated. Yes I am that bright. I was truly hoping that I didn't contaminate him because I just wasn't sure, all I knew was the the jars didn't seem to be in the right place. Oh that is the other thing, I fix their stuff in different places. Super careful I am, yet I still manage to mess up. Today my fears were confirmed with the face rash he gets when he has had gluten and he also threw up at school today. Could be a virus but I am betting on gluten being our culprit this time. The only good thing about the rash on his face is that I know for sure that he as gotten gluten. He can't communicate that he doesn't feel good to me yet and the rash is my proof that once again I did it. Before we knew he had Celiac Disease his face had a constant rash on it and nobody could tell me why. We tried ointments and nothing worked until I took him off gluten. Amazing how that works. So I am not sure what the answer is I sometimes think we just need to all be gluten free to some extent just so I don't have to worry. But that would be asking a lot of everyone. Two kitchens might help me out but then I would have to clean both of them and I hate cleaning one kitchen so that is out. I need to wake up and drink my coffee because my boy is the one that pays the price. Wish me luck because I put peanut butter on everything he eats except the corn and cheese roll up and his pizza. Peanut butter is good on everything and for my boy it is like a spoon full of sugar helping the medicine go down.
We think you doing great and done let it get you down because we are all thier for you because we all Love all of you I thing that by you lettein it out you are doing fine
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